Associate Professor Ed Giles and Awareness Month Champion Aiyahna spoke with ABC Host and CCA Ambassador Jacinta Parsons on ABC Radio National’s Life Matters program this morning about the care and support received by kids living with IBD and other chronic health diseases across Australia, especially in regional, rural and remote locations.
When asked what she would like to see change in regional locations for young people living with IBD, Aiyahna said: “Really getting that holistic help from a team of specialists. For me, I just had contact with a paediatric gastroenterologist, but it would have been great to have a team that I could contact for all of the different symptoms and consequences that pop up as a result of this diagnosis. For example, access to support nurses, and mental health support.”
You can listen to the interview here: