Research Priorities

The top 10 research priorities for IBD in Australia have been decided by you and will be shared in a livestream event on 25 May 2022 7:30pm AEST. Please register here to join us in launching the priorities.

Project Overview

CCA worked in collaboration with The James Lind Alliance to identify the top 10 research priorities of people with IBD, carers and healthcare professionals.

The first phase of this project involved a survey for IBD patients, carers and healthcare professionals, which aimed to collect questions about IBD that will help identify the most common unanswered research questions. We are grateful to over 200 people living with IBD, carers, healthcare professionals and clinical researchers who submitted almost 900 questions or concerns they have about IBD.

Thank you to over 500 people with IBD, carers and healthcare professionals who participated in a second survey to prioritise a list of 56 unanswered IBD research questions. Two workshops were then held with 23 people with IBD, carers and healthcare professionals to discuss and rank the top 17 questions from the second survey.

The final top 10 research questions for IBD in Australia have been agreed upon and will be launched at the livestream event on 25 May 2022 19:30pm AEST. Register for this event here.

Your participation in the surveys and workshops will help encourage researchers and research funders to focus on the most urgent and relevant needs of people living with IBD with a view to attracting more research funding to IBD.

Updates on the project will be available on this page or on the JLA website in the future.

This innovative project is being developed by CCA in partnership with Australian stakeholders using a proven methodology established by the James Lind Alliance and being adapted with the JLA Lab.

This project is supported by Janssen, Takeda and a generous anonymous philanthropist.