IBD Paediatric Quality of Care
Hospital Audit Research Report launched at Parliament House
CCA launched the IBD Paediatric Quality of Care Hospital Audit Research Report at an event hosted by the Parliamentary Friends of Autoimmune Diseases lead by Ms Jenny Ware MP on 30 May 2024. The event in Parliament House was an opportunity to hear from Tyce and Aiyahna, people living with IBD, A/Prof Edward Giles gastroenterologist, CCA CEO Leanne Raven and Members of Parliament.
The full Research report and Infographic are now available.
Project Overview
In 2021 Crohn’s & Colitis Australia (CCA) was successful in gaining funding for an IBD Paediatric Patient Experience Survey and Audit over 2 years. The project addressed a key priority in the IBD National Action Plan.
The project aims to:
- Assess the patient experience of the quality of care for young people with IBD
- Compare the differences in the quality of care received in 2021 with the 2016 IBD Audit results, and
- Provide recommendations on improving the quality and equity of care for young people with IBD.
An Advisory Committee with members from various healthcare professional backgrounds, CCA project staff and consumer representatives oversaw this major project.
This included key stakeholder peak bodies specific to paediatric care and IBD from:
- Royal Australasian College of Physicians (RACP)
- Gastroenterological Society of Australia (GESA)
- Dietitians Australia
- Australian and New Zealand Association of Paediatric Surgeons
- Gastroenterological Nurses College of Australia / IBD Nurses Australia
The IBD Paediatric Quality of Care Patient Experience Survey 2023 Research Report is now available.
This project has been approved by Monash Health Human Research Ethics Committee (Approval #RES-22-0000050L).
If you have any questions about this project, please email us: [email protected].
Project Advisory Committee
We are grateful to the Project Advisory Committee for their dedication and expertise to guide this project.
If you have any questions about this project, please email us; [email protected]
| Name | Role |
|---|---|
| Dr Edward Giles (Chair) | Paediatric Gastroenterologist |
| Dr Chris Burgess | Paediatric Gastroenterologist, Epidemiologist |
| Dr Shoma Dutt | Paediatric Gastroenterologist |
| Dr Nitin Gupta | Paediatric Gastroenterologist |
| Dr George Alex | Paediatric Gastroenterologist |
| Dr Paul Hammond | Paediatric Gastroenterologist |
| Dr Ajay Sharma | Paediatric Gastroenterologist |
| Dr Scott Nightingale | Paediatric Gastroenterologist |
| Professor Paul Pavli | Gastroenterologist |
| Merran Spargo | Paediatric Nurse |
| Helen Jurgens | Paediatric Nurse |
| A/Prof Antonina Mikocka-Walus | Psychologist |
| Deirdre Burgess | Dietitians Australia representative |
| A/Prof Ram Nataraja | Surgeon, ANZAPS representative |
| Leanne Raven | CEO, Crohn’s & Colitis Australia |
| Wayne Massuger | Crohn’s & Colitis Australia |
| Stephan Möller | Crohn’s & Colitis Australia |
This project was supported by the Australian Government Department of Health and Aged Care