IBD Paediatric Quality of Care

Hospital Audit Research Report launched at Parliament House

Photograph by Bradley Cummings.
Hospital Audit Research Report Launch

CCA launched the IBD Paediatric Quality of Care Hospital Audit Research Report at an event hosted by the Parliamentary Friends of Autoimmune Diseases lead by Ms Jenny Ware MP on 30 May 2024. The event in Parliament House was an opportunity to hear from Tyce and  Aiyahna, people living with IBD, A/Prof Edward Giles gastroenterologist, CCA CEO Leanne Raven and Members of Parliament.

The full Research report and Infographic are now available.

Project Overview

In 2021 Crohn’s & Colitis Australia (CCA) was successful in gaining funding for an IBD Paediatric Patient Experience Survey and Audit over 2 years. The project addressed a key priority in the IBD National Action Plan.

The project aims to:

  • Assess the patient experience of the quality of care for young people with IBD
  • Compare the differences in the quality of care received in 2021 with the 2016 IBD Audit results, and
  • Provide recommendations on improving the quality and equity of care for young people with IBD.

An Advisory Committee with members from various healthcare professional backgrounds, CCA project staff and consumer representatives oversaw this major project.

This included key stakeholder peak bodies specific to paediatric care and IBD from:

  • Royal Australasian College of Physicians (RACP)
  • Gastroenterological Society of Australia (GESA)
  • Dietitians Australia
  • Australian and New Zealand Association of Paediatric Surgeons
  • Gastroenterological Nurses College of Australia / IBD Nurses Australia

The IBD Paediatric Quality of Care Patient Experience Survey 2023 Research Report is now available.

This project has been approved by Monash Health Human Research Ethics Committee (Approval #RES-22-0000050L).

If you have any questions about this project, please email us: [email protected].

Project Advisory Committee

We are grateful to the Project Advisory Committee for their dedication and expertise to guide this project.

If you have any questions about this project, please email us; [email protected]

Dr Edward Giles (Chair)Paediatric Gastroenterologist
Dr Chris BurgessPaediatric Gastroenterologist, Epidemiologist
Dr Shoma DuttPaediatric Gastroenterologist
Dr Nitin GuptaPaediatric Gastroenterologist
Dr George AlexPaediatric Gastroenterologist
Dr Paul HammondPaediatric Gastroenterologist
Dr Ajay SharmaPaediatric Gastroenterologist
Dr Scott NightingalePaediatric Gastroenterologist
Professor Paul PavliGastroenterologist
Merran SpargoPaediatric Nurse
Helen JurgensPaediatric Nurse
A/Prof Antonina Mikocka-WalusPsychologist
Deirdre BurgessDietitians Australia representative
A/Prof Ram NatarajaSurgeon, ANZAPS representative
Leanne RavenCEO, Crohn’s & Colitis Australia
Wayne Massuger Crohn’s & Colitis Australia
Stephan MöllerCrohn’s & Colitis Australia

This project was supported by the Australian Government Department of Health and Aged Care