Personal stories

Read stories written by our community about their lived experience of Crohn’s and colitis and how they have overcome challenges and adversity.

Meet Issy

Issy Neilson shares her experience being diagnosed with and managing Crohn’s Disease.

personal story

Diagnosed later in life

Sally Kronk details her story of being diagnosed with ulcerative colitis

Sally Kronk

personal story

Meet Cooper

Cooper Thompsons parents tell his story of being diagnosed with VEO-IBD

Cooper Thompson

personal story

Meet Alexandra: Fearless fundraiser

Alexandra Nash tells her story of completing the 2023 Live Fearless Challenge and what obstacles she had to overcome to get there

Alexandra Nash

personal story

Meet Lauren

Lauren Profeta tells her story of having ulcerative colitis and about the support group Laura facilitates

Lauren Profeta

personal story

Marion’s way

Marion Pilowsky battled through Crohn’s to film her documentary to educate about Crohn’s and be inspired to achieve the unachievable

Marion Pilowsky

personal story

Battling the unseen: living with Crohn’s 

Danny El Helou was diagnosed with Crohn’s when he was 13 and was able to battle lots of adversity to have a wonderful life

Danny El Helou 

personal story

Living with Ulcerative Colitis 

Tony McLeod tells his story of dealing with food allergies leading to an ulcerative colitis diagnosis explaining his adversities that the diagnosis caused

Tony McLeod 

personal story

Year 12 Interrupted 

Brydie Smith tells her story of going through year 12 not knowing she had Crohn’s and the events that occurred after

Brydie Smith

personal story


Andrea Kewish explains her story of overcoming Crohn’s and issues that are a consequence of her diagnosis

Andrea Kewish 

personal story

Living my Best Life!

Liesel Whyte details her timeline of living with IBD and how it has helped her grow and appreciate life

Liesel Whyte

personal story

It’s all got to come out 

Mark Boyne details his issues with Crohn’s and how his life has changed since his diagnosis.

Mark Boyne