Useful links

Global network of IBD organisations

Non-English websites

  • Association François Aupetit (AFA)
    www.afa.asso.fr (French)
  • DCCV, Deutsche Crohn Colitis Vereinigung 
    www.dccv.de (German)
  • RMT – Riksfoerbundet foer Mag- och Tarmsjuka (RMT)
    www.magotarm.se (Swedish)
  • AMICI Onlus, Association Nazionale per le Malattie Infiammatorie Croniche dell’Intestino
    www.amiciitalia.net (Italian)
  • ACCU España – Confederación de asociaciones de enfermos de Crohn y Colitis Ulcerosa de España – www.accuesp.com (Spanish)

Australian government websites

  • Centrelink
    www.humanservices.gov.au/customer/dhs/centrelink
    Centrelink is part of the federal government Department of Human Services. It delivers payments and services for retirees, the unemployed, families, carers, parents, people with disabilities, Indigenous Australians, and people from culturally and linguistically diverse backgrounds, and provides services at times of major change.
  • Department of Health
    www.health.gov.au
    The Australian Government Department of Health  website for families, seniors, adults, parents, teenagers, carers etc.  Topics covered include  education and prevention, conditions and diseases, health products, rural health, services etc. 
  • Food Standards Australia New Zealand
    www.foodstandards.gov.au
    Food Standards Australia New Zealand has publications and fact sheets for the consumer. Formerly known as ANZFA (Australia New Zealand Food Authority)
  • National Health and Medical Research Council
    www.nhmrc.gov.au
    The NHMRC is Australia’s peak body for supporting health and medical research, development of health advice for the community, professionals and government. Also provides advice on ethical behaviour in health care and research.  
  • Therapeutic Goods Association
    www.tga.gov.au
    The Therapeutic Goods Association carries out a range of assessment and monitoring activities to ensure therapeutic goods available in Australia are of an acceptable standard.

Library and references

  • Australian Medicines Handbook
    www.amh.net.au
    Australian Medicines Handbook provides practical, reliable, comparative medicines information resources for health professionals.
  • Australian Prescriber
    www.australianprescriber.com
    The Australian Prescriber is an independent publication providing information about drugs and therapeutics.
  • MIMS
    www.mims.com.au
    MIMS is the publication used by GPs, specialists and pharmacists, it provides specific information about medications for a patient’s specific medical condition.
  • Better Health Channel
    www.betterhealth.vic.gov.au
    The Better Health Channel is developed by the Victorian Health Department.  Excellent source of information and useful links for everybody.
  • My Doctor
    www.mydr.com.au
    A website developed & maintained by Doctors, covers medical issues, conditions, healthy eating and fitness.
  • UK National Institute for Clinical Excellence
    www.nice.org.uk
    A UK website for the National Institute for Clinical Excellence (NICE), an organisation providing the UK with guidance on promoting good health and preventing and treating ill health.
  • USA National Library of Medicine
    www.nlm.nih.gov
    The United States National Library of Medicine is a website for the general public and professionals.
  • Therapeutic guidelines
    www.tg.com.au
    The Therapeutic Guidelines is a not-for-profit organisation deriving guidelines for therapy from the worlds literature.

Medical societies

  • Gastroenterological Society of Australia
    www.gesa.org.au
    The GESA website is a great resource for families and professionals, with great graphics and easy to read explanations of the bowel etc.
  • Gastroenterological Nurses College of Australia Inc
    www.genca.org
    The GENCA site is useful resource for information relating to specialist gastroenterological nurses.
  • American Gastroenterology Association
    www.gastro.org
    The website for the American Gastroenterology Association is a useful site for people living with IBD, families and professionals, with great visuals to help understand the bowel. 
  • British Society of Gastroenterology
    www.bsg.org.uk
    The website for the British Society of Gastroenterology provides information for treatments, resources and other useful information.
  • International Organization for the Study Of IBD
    www.ioibd.org
    The International Organization for the Study of Inflammatory Bowel Diseases (IOIBD) is the only international worldwide organization devoted to these chronic and sometimes disabling diseases involving different parts of the gastrointestinal tract. 
  • Society of International Gastroenterology Nurses
    www.signea.org
    The SIGNEA website is a resource for gastroenterology nurses.

Other forums

  • IBD Support Australia
    www.ibdsupport.org.au/community-forum
    A general information service for people with IBD.
  • IBD.mindovergut.com
    https://IBD.mindovergut.com
    An online mental health service offering information, assessment, and online treatment programs (“eTherapy”) for anxiety and/or depression for individuals with diagnosed with Inflammatory Bowel Disease (IBD).

Other health organisations

  • Australian Divisions of General Practice
    www.gp.org.au
    The Australian peak body representing doctors (General Practitioners) throughout Australia.
  • Australian Hypnotherapists’ Association
    www.ahahypnotherapy.org.au
    A useful site for those wanting to find an accredited Hypnotherapist.
  • Arthritis Australia
    www.arthritisaustralia.com.au
    A useful website for sufferers, families, friends and professionals.
  • Australian Council of Stoma Associations Inc
    www.australianstoma.com.au
    The Australian Council of Stoma Association represents the nationwide regional stoma associations. Useful information with links to support groups and other important information.
  • Australian Psychological Society
    www.psychology.org.au
    This website provides a service for finding a registered psychologist in Australia.
  • The Coeliac Society of Australia
    www.coeliac.org.au
    The Coeliac Society website is a great resource for those sufferers, family members and professionals looking for further information and assistance.
  • Irritable Bowel Information and Support
    www.ibis-australia.org
    The IBIS website is a great site for those wanting more information regarding IBS.
  • IBS.mindovergut.com
    Support for those living with Irritable Bowel Syndrome.
  • Osteoporosis Australia
    www.osteoporosis.org.au
    A useful website for those wanting more information relating to osteoporosis.
  • Leiomyosarcoma
    Leiomyosarcoma.org
    Leiomyosarcoma (LMS) is a rare form of cancer that most commonly affects the uterus but can also affect other areas such as the bladder or gastrointestinal system.
  • Rural Doctors Association of Australia
    www.rdaa.com.au
    A useful website for those wanting more information pertaining to rural doctors.
  • Dietitians Association of Australia
    daa.asn.au/
    The website for the Dietitians Association of Australia provides general information on healthy eating and a service to find an accredited dietician with a special interest in IBD.
  • Continence Foundation of Australia
    continence.org.au
    Continence Foundation of Australia represents the interests of Australians affected by, or at risk of, bladder and bowel control problems and act as an advocate for their interests. It exists to serve all Australians by promoting bladder and bowel health.

Consumer support

  • Consumer’s Health Forum of Australia
    www.chf.org.au
    The Consumer’s Health Forum is the national voice for consumers, helping shape the health system. 
  • Chronic Illness Alliance Inc
    www.chronicillness.org.au
    The Chronic Illness Alliance aim is to build a better focus in health policy and health service for those with a chronic illness.
  • Private Health Insurance Ombudsman
    www.phio.org.au
    The Private Health Insurance Ombudsman provides an independent service to help consumers with health insurance problems and enquiries.
  • Psychological Therapy Program
    www.tameyourgut.com
    Psychological Therapy Program for People Living with Inflammatory Bowel Disease by the IBD Clinic Dept of Gastroenterology & Hepatology.

Clinical trials

  • Australian Clinical Trials
    www.australianclinicaltrials.gov.au
    The website aims to provide reliable and up-to-date information and advice about clinical trials in Australia for the public, researchers and industry. For the public, the website provides easy to understand information about clinical trials in Australia and how to become involved in a clinical trial. For industry, it provides information on the advantages of conducting clinical trials in Australia. For researchers, it provides an overview of the legislative and regulatory environment and useful links.
  • American Clinical Trials
    www.clinicaltrials.gov
    The website for American clinical trials.
  • European IBD Trials
    www.trials.ibdis.net
    This is the first multilingual and multicentred listing of current clinical trials in the field of inflammatory bowel diseases in Europe.  Patients and doctors have access to the latest study information, including details of all the European Patient IBD Associations.

Find a toilet

  • Can’t wait affiliates
    www.cantwait.net.au
    The Can’t Wait Card is issued to members of CCA who have been formally diagnosed with Crohn’s or colitis (IBD), to help them gain access to a toilet in times of urgency. By recognising the card, retailers, businesses and venue operators allow people IBD access to their toilets when needed.
  • National public toilet map
    www.toiletmap.gov.au
    The Toilet Map provides information on over 16,000 publicly available toilets across Australia, including accessibility, opening hours and facilities, such as showers & baby change.

Other