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IBD State of the Nation
Overview
CCA is commencing a project to update estimates of the IBD incidence and prevalence in Australia, as well as quantify the financial and social burden of IBD. Understanding the prevalence of inflammatory bowel disease (IBD) and its burden on the Australian community is essential to the improvement in quality, equity and access to services for people living with these chronic inflammatory gut conditions.
The objectives of the project are to:
- Research IBD incidence and prevalence data to update national IBD estimates in Australia and its states and territories for 2024.
- Provide projections of prevalence of IBD in Australia and its states and territories for 10 years.
- Estimate the cost of IBD related healthcare and other financial costs.
- Describe the burden of disease of IBD in Australia including disability impact.
- Identify priority actions and conduct cost – benefit analysis.
The IBD State of the Nation Project has commenced and will see a multidisciplinary advisory committee led by A/Prof Gregory Moore come together to oversee the project. CCA has engaged economics consultancy, Insight Economics, to provide highly specialised expertise in this data driven project.
The project includes a comprehensive national survey exploring the out-of-pocket costs experienced by people living with IBD. Over 600 people have completed the survey, providing important insights into patients’ and carers’ experience in the health system, the financial burden IBD places on households, and the impact of IBD on peoples’ income, education, schooling, and social life. The survey also asked people living with IBD to share their views on future policy priorities for government.
The IBD State of the Nation Report is due to be completed by the end of 2024. CCA hopes to use the new data to support increased investment by government and funders to address the gaps in IBD health care.
Contact: [email protected]
Advisory Committee
- A/Prof Gregory Moore
- Julie Weldon
- Kelly Lambert
- A/Prof Edward Giles
- A/Prof Rob Bryant
- A/Prof Simon Knowles
- Prof Antonina Mikocka-Walus
- Dr Emma Halmos
- Ruth Malcolm
- Daniel Lightowler
- Dr Hugh Giddings
- A/Prof Jane Smith
- Bruce Goodwin
- Prof Paul Pavli
- Prof Jane Andrews
- Blake Tierney
- Rose Mitchell
- Leanne Raven
- Wayne Massuger
Sponsors
This project is support by the generosity of CCA donors and:
Gold Sponsors
Bronze Sponsors
