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CEA IBD
Consumer Education and Awareness
Project Overview
Crohn’s & Colitis Australia (CCA) has been funded by the Australian Government Department of Health and Aged Care to conduct a one-year project focused on providing information to improve the wellbeing of people living with inflammatory bowel disease (IBD).
This project is an extension of the 2019-2023 project, which collaborated with Swinburne University of Technology Centre for Global Health and Equity to improve the information and services that are provided to people with Crohn’s disease and ulcerative colitis. In the 2019-2023 project, 13 major project activities (shown below) were implemented and evaluated to make it easier for people living with IBD and their carers to access, understand and use health information and services.
The 2024-2025 project will build on these activities by expanding CCA’s multilingual resources, developing new materials for the CCA website based on current IBD topics, and creating resources aimed at supporting older people living with IBD. These new resources will be designed to help people living with IBD to better manage their condition and improve their health and wellbeing.
2019-2023 Project Activities
| Resource | |
|---|---|
| A4 poster to display in clinic rooms to help clinicians link their patients to CCA. |  |
| Website redesigned and launched in 2022 to improve navigation and user experience. |  |
| Website information published on the management and treatment of IBD: – Crohn’s disease treatment – Ulcerative colitis treatment – Complications of IBD – Medication for IBD – Nutrition – Psychological health – Surgery – Remission – Covid-19 – Vaccinations |  |
| Youth specific website information published: – Kids and IBD – Teens and IBD – Parents and IBD – Moving from paediatric to adult care |  |
| My Partner in Care booklet converted into an animation video Managing my IBD. |  |
| Website information published on communicating about IBD: – Supporting someone with IBD – Communicating about my IBD |  |
| Information about financial assistance, Medicare, PBS, private health insurance, and Centrelink benefits. |  |
| Working with IBD booklet converted into an animation video Working with someone who has IBD. |  |
| Students with IBD booklet converted into an animation video My school friend has IBD. |  |
| Connect with a Peer service provides online support for people living with IBD, their families and friends. |  |
| Select CCA website resources translated into 5 languages other than English: – Arabic – Farsi – Punjabi – Simplified Chinese – Vietnamese |  |
| Support for people living in rural and remote locations. The IBD Service Locator assists people living with IBD locate a gastroenterology health service near them. |  |
| Print resource for libraries including information on how to access digital services and CCA. |  |
Report (2023)
Research publications
Optimising Health Literacy and Access (Ophelia) process for IBD paper
Global Health Literacy Presentation
Project Advisory Committee
The 2024-2025 project is overseen by the Crohn’s & Colitis Australia Scientific, Medical and Quality of Care Advisory Committee.
Thank you to the 2019-2023 Project Advisory Committee for their dedication and expertise in guiding this project:
| Name | Role |
|---|---|
| A/Prof Gregory Moore (Chair) | Director, Crohn’s & Colitis Australia Gastroenterologist |
| A/Prof John Ding | Gastroenterologist |
| A/Prof Simon Knowles | Psychologist |
| Alexandra Sechi | Nurse |
| Julie Weldon | IBD Community Representative |
| Hugh Whittaker | IBD Community Representative |
| Leanne Raven | CEO, Crohn’s & Colitis Australia |
| Wayne Massuger | Crohn’s & Colitis Australia |
| Hailey Fisher | Crohn’s & Colitis Australia |