Calling all adults with UC, you are invited to participate in a research study conducted by a collaborative group of international researchers and the Inflammatory Bowel Disease service at The Queen Elizabeth Hospital (South Australia, Australia).
Participation involves completion of an online survey which would contribute to valuable dietary research in ulcerative colitis.
Scan the QR code or follow the link for more information and link to the survey.
https://survey.redcap.sahealth.sa.gov.au/surveys/?s=7KPLLWRDR7XWJ3H3
The Royal Australian College of General Practitioners (RACGP) recently covered CCA’s recommendations and findings from the IBD Paediatric Quality of Care Hospital Audit report.
The article featured interviews from CCA CEO Leanne Raven, and paediatric gastroentorologist and audit chair, Associate Professor Ed Giles.
“Crohn’s and Colitis Australia Chief Executive, Associate Professor Leanne Raven, said GPs can be key to patients receiving quicker diagnoses and greater knowledge about their condition, and should not be kept in the dark.
‘GPs play a really prominent role in this care, particularly in terms of kickstarting diagnoses … it makes a huge difference to these kids,’ she told newsGP.
‘Now that we have tests like faecal calprotectin, which can differentiate between irritable bowel syndrome and conditions like IBD, we’re hoping that GPs will be using that more when people present with symptoms.’
‘The best thing for a GP to do, once a patient is diagnosed, is to make sure they’re getting that multidisciplinary support, to communicate well with the other specialists, and for that communication to go both ways so everyone’s on the same track.’“
You can read the article, and our Paediatric Quality of Care reports, in the links below:
RACGP – GPs being left out of patients’ IBD treatment
IBD Paediatric Quality of Care – Crohn’s & Colitis Australia (CCA) (crohnsandcolitis.org.au)
Carrot, banana, zucchini & walnut loaf
Makes 1 loaf
CCA’s recipes are not tailored to individual requirements. Please review recipes to ensure they are appropriate for you from an IBD and broader diet perspective. If you think the consumption of certain foods leads to uncomfortable digestive or other symptoms, please speak to your health care professional. Consider connecting with a specialist GutSmart Dietitian and/or Psychologist.
Ingredients
2 small bananas – mashed
1 zucchini – grated
2 small carrots – grated
105g walnuts chopped into large pieces (save some extra to decorate the top of the loaf)
70g dried cranberries
3 eggs lightly beaten
1 cup brown sugar
½ cup sunflower oil
2.5 cups self raising flour – sifted
1 tsp cinnamon
1 tsp mixed spice
1 tsp bi-carb soda
pinch of salt
Method
Preheat oven to 180°C.
Grate the carrot and zucchini in a large bowl.
Add the mashed banana, cranberries and chopped walnuts.
Add the eggs, sugar, oil, spices and salt and mix until evenly combined.
Fold through the sifted flour and bi-carb soda until the flour is just combined
(Don’t over mix the ingredients as it makes a heavy loaf).
Add to your greased loaf pan and cook for approx. 1 hour and 10 minutes.
The top can brown and burn quite quickly so keep an eye on it and turn the oven down or put foil over the loaf.
YOU Inc. AGM & Educational meeting 10th August 2024
We are so pleased to announce we have a wonderful Guest Speaker, Mr Malcolm Steel, (Colorectal surgeon) speaking
at this meeting (this will be recorded for those who cannot attend). The AGM will follow – so come and join us, it’s a very casual, friendly get together! Bring a friend or family member, everyone is welcome!
Malcolm Steel is a Colorectal surgeon specialising in laparoscopic and open surgery for colorectal cancer, inflammatory bowel disease and diverticulitis. His special interests are Laparoscopic colorectal surgery, open colorectal surgery for cancer of the
colon and rectum, colonoscopy including advanced interventions, TEMS (Trans anal endoscopic microsurgery), complex anorectal surgery. He is affiliated with The Epworth Eastern Hospital, Box Hill, The Box Hill Hospital and Glen Iris Private Hospital.
PLEASE NOTE THE NEW VENUE
When – Saturday, 10th August 2024
Time – 9.30 — 2.00pm
Where – Women’s & Men’s Health Physiotherapy,
** 2nd Floor – there is NO lift, only stairs **
549 Burke Road
Camberwell Vic
Parking is on Burke Road
$5 entry includes lunch, refreshments
TRADE COMPANIES WILL BE ATTENDING SHOWING
THEIR LATEST SUPPLIES
Come along and have a chat to them and have samples sent to you.
R.S.V.P. 8th August – for catering purposes Email: [email protected], or privately message Bonnie (admin)
or Helen (admin) through our fb page or phone Helen 0412 144 230 and leave a message.
Website— www.youinc.org.au
“Researchers at the Francis Crick Institute, working with UCL and Imperial College London, have discovered a new biological pathway that is a principal driver of inflammatory bowel disease (IBD) and related conditions, and which can be targeted using existing drugs.
About 5% of the world’s population, and one in ten people in the UK, are currently affected by an autoimmune disease, such as IBD, the umbrella term for Crohn’s disease and ulcerative colitis. These diseases are also becoming more common, with over half a million people living with IBD in the UK as of 2022, nearly double the 300,000 previously estimated.
Despite increasing prevalence, current treatments do not work in every patient and attempts to develop new drugs often fail due to our incomplete understanding of what causes IBD.”
You can learn more about this groundbreaking research coming out of the Francis Crick Institute below:
Major cause of inflammatory bowel disease discovered | Crick
You can also read the Nature article here.
A disease-associated gene desert directs macrophage inflammation through ETS2 | Nature
An article recently featured in the ABC which discussed the increasing prevalence of Inflammatory Bowel Disease diagnoses in Australia – as well as the rise in the number of children and adolescents diagnosed with IBD, both locally and globally.
Our Awareness Month Champion Chris* and his mother Sarah* (names changed) featured in the story. You can read their personal story here, and the ABC article in the link below.
Inflammatory bowel disorder rates are increasing in children and no-one knows why – ABC News
“Cambridge scientists have grown ‘mini-guts’ in the lab to help understand Crohn’s disease, showing that ‘switches’ that modify DNA in gut cells play an important role in the disease and how it presents in patients. These could in future be used to identify the best treatment for an individual patient, allowing for more precise and personalised treatments.”
You can read the full study report here:
Lab-grown ‘mini-guts’ could change how we treat Crohn’s disease (cam.ac.uk)
CCA recently entered into an Information Partnership with Healthdirect Australia. This partnership allows us to share our resources with a wider audience.
CCA CEO Leanne Raven celebrated the news on LinkedIn.
“Fantastic to partner with Healthdirect Australia to share the wonderful resources from the Crohn’s & Colitis Australia website so that people are getting access to the best available information- just the good stuff and not the crap,” she said
Visit the Crohn’s and Colitis Healthdirect page here.
A segment on 10 News First that aired yesterday on the Garvan Institute of Medical Research autoimmune disease research project.
“The longer term objective is to use this research to identify new therapeutics that can be used to solve conditions in patients that don’t have effective treatments so far.”
We want to thank CCA Awareness Month Champion Madeleine for featuring in the piece!
You can watch the segment here.
Serves 4
CCA’s recipes are not tailored to individual requirements. Please review recipes to ensure they are appropriate for you from an IBD and broader diet perspective. If you think the consumption of certain foods leads to uncomfortable digestive or other symptoms, please speak to your health care professional. Consider connecting with a specialist GutSmart Dietitian and/or Psychologist.
Ingredients
– Approx. 250g (8 ounces) bowtie or shell pasta – cooked
– ¼ cup diced red onion (about ½ small onion)
– ½ cup diced celery
– 1 small zucchini, cut in half length ways and sliced
– 1x200g (7 ounces) jar roasted red peppers, drained, and chopped
– 8-10 sundried tomatoes (not packed in oil) reconstituted, drained and cut
– 8-10 kalamata olives, pitted and halved
– ⅓ cup basic vinegar
Method
– Prepare pasta and drain.
– Combine all ingredients in a large bowel and toss to coat evenly.
– Cover and chill for at least 2 hours before serving
Enjoy with your favourite protein or on its own.
Treatment for IBD progresses every year, with the use of biologics reducing the rate of surgery. However, in IBD that does not respond to treatment with medication, surgery may be required, with a 10% chance of surgery in ulcerative colitis and 30% in Crohn’s disease over a ten-year period. Typically, minimally invasive techniques such as laparoscopic surgery (also known as keyhole surgery) are used, which reduces the pain during recovery, leads to shorter hospital stays and has a lower risk of complications compared to laparotomy (open surgery). Surgery in patients with IBD is in general challenging due to the changes in anatomy caused by inflammation.
Robotic surgery or robot assisted surgery is a type of surgical technique which utilises a robot platform that enhances the precision of hand movements and visual perception of the surgeon undertaking the surgery. It was first used in 2004, with only a few cases, and has vastly increased to almost 20,000 in 2022. It is already commonly used for complex surgeries such as prostate surgery and removal of colon cancers in a minimally invasive manner.
A 2024 study published in the Journal of Crohn’s and Colitis evaluated the use of robotic surgery for colon resection in patients with inflammatory bowel disease (IBD) compared to standard laparoscopic techniques. The systematic review analysed 11 studies consisting of over 5000 patients. It found that robotic surgery achieved similar outcomes compared to laparoscopic surgery. It had an overall lower complication rate and a shorter length of stay in hospital for certain types of surgery but surgeries on average took longer compared to laparoscopic surgery, with this being attributed to the lack of familiarity and a ‘learning curve’. More research will need to be undertaken in this area as the studies that were included did not investigate long term outcomes, mortality and recurrence of disease after resection.
Unfortunately, robotic surgery for IBD is still in its infancy so it is unlikely that if you have a surgery soon it will be undertaken using a robotic platform. Despite the number of operations performed a year using robotic surgery, only 17% of those are used in general surgery with the vast majority used in urology. There is also a difference in the number of platforms available for public patients and rural patients, with only 26 of the total 162 available in public hospitals and only 14 in rural and remote hospitals. This disparity has been identified by The Royal Australasian College of Surgeons and a working group formed to address these issues.
Researchers from the University of Wollongong are recruiting people with Crohn’s disease and colitis for an opportunity to test a new tool designed to support knowledge and confidence building about diet and eating with IBD.
𝐖𝐡𝐨 𝐜𝐚𝐧 𝐩𝐚𝐫𝐭𝐢𝐜𝐢𝐩𝐚𝐭𝐞?
People are eligible to participate if they:
– have a scheduled visit to their dietitian of choice or who intend to schedule a visit within October 2024
– diagnosed with IBD
– 18+ years
– can read and speak English
𝐖𝐡𝐚𝐭 𝐢𝐬 𝐢𝐧𝐯𝐨𝐥𝐯𝐞𝐝?
If you wish to participate you will be asked to complete questionnaires before and after the visit to the dietitian and to test an IBD diet specific Question Prompt Sheet
𝘉𝘦𝘧𝘰𝘳𝘦 𝘵𝘩𝘦 𝘷𝘪𝘴𝘪𝘵:
– Complete the Patient Activation Measure questionnaire (approximately 5 minutes)
– Read the Question Prompt sheet ahead of the visit with your dietitian
𝘈𝘧𝘵𝘦𝘳 𝘵𝘩𝘦 𝘷𝘪𝘴𝘪𝘵 𝘸𝘪𝘵𝘩 𝘺𝘰𝘶𝘳 𝘥𝘪𝘦𝘵𝘪𝘵𝘪𝘢𝘯:
– Following the visit with your dietitian, you will be asked to complete the Patient Activation Measure a second time, the Nutrition Dietetics Patient Outcome Questionnaire and a feedback form (approximately 15 minutes)
– Once completed enter a draw for a chance to win one of five $100 vouchers
For more information visit https://cm4205.wixsite.com/ibd_diet_qps
Contact Chiara the coordinating investigator on [email protected]
or call 02 4221 5251