Medication
Navigating My Life with Crohn’s Disease – Devin’s Story
To anyone living with IBD, remember you’re not alone. With support, self-care, and hope, anything is possible!
Finding Clarity After Uncertainty – Hannah’s Story
Being repeatedly dismissed made me feel invisible, like I was fighting something serious on my own.
Balancing Ulcerative Colitis, Work, and Motherhood – Nanjè’s story
Looking back, the journey has not been easy, but it has made me stronger, more patient and far more grateful for my body. I am living well, I am managing my condition, and I am genuinely proud of how far I have come.
“Being mindful isn’t weakness. Being prepared isn’t limitation. Knowing your body isn’t defeat: it’s strength.” – Karl’s story
I wanted to share my UC story, in a real, honest, “this is how it unfolded and what I’ve learned” kind of way. Maybe it helps someone who’s in the thick of it right now.
“I know I’m in very good hands with my amazing specialist and nursing team and I would like to thank them all so much” – Rachael’s story
I have colonoscopy's every 3 years now as, in my last few, I have been in deep remission. I know I'm in very good hands with my amazing specialist and nursing team and I would like to thank them all so much.
“Through all of it we have no choice but to go on with our days” – Svetlana’s story
For the last 9 and a bit years, I’ve only been in remission from my disease for one of those years. I’ve missed out on so many opportunities and general enjoyment because of this disease taking over my life.
“My friends keep reminding me that I should be proud of myself and lately, I really have been feeling that way.” – Emmie’s story
A few months into traveling, I had another checkup. The results: deep remission. All the hard work, taking multiple daily meds and supplements and working on my diet was all worth it! I cried happy tears in recovery, it had been such a long road back to feeling like myself.
“I still live a good life working and doing things I love doing” – Ronald’s story
At 58 years old I still have trouble with restrictions but with determination I still live a good life working and doing things I love doing.
“I’m reminded that my life isn’t completely ‘normal’ – but that’s okay – it’s my normal.” – Christian’s story
Since starting infliximab I’ve also packed up my life and moved to London for six months. I’ve taken part in a placement program in rural India. I’ve travelled to Bali, Singapore, the UK, Hungary, Greece, Belgium, Netherlands, Spain… I’ve attended the AusGP. I’ve graduated from a Bachelor of Pharmacy. I’ve worked full-time. I’ve studied for and sat multiple exams. I’ve learnt how to cook (or at least am trying to). I’ve made new friends and reconnected with old. I’ve been to concerts and festivals and beaches and parties galore.
“I have learnt so much about myself” – Bridie’s story
My experience with Ulcerative Colitis (UC) began long before I had a name for it
“You deserve a medical team that listens and investigates” – Elle’s story
While life is not completely the same as it was before diagnosis, it’s a new normal I can count on. I’m stronger, supported, and finally in control.
“Because Crohn’s is a permanent part of our lives and we’re not going anywhere” – Taylor’s story
I have been able to get back into my passions of live music and creating art - something my body wouldn't let me do for a long time. I have recently started looking into IBD support, and it's sad the lack of support for us.