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“I feel like I am one of the lucky ones being diagnosed so quickly when some people wait years for answers.” – Amanda’s story
I had never known such high anxiety until this trip, walking around an exhibition at the Australian Museum not knowing if my body will be good or I would have to run and find a toilet.
“Through all of it we have no choice but to go on with our days” – Svetlana’s story
For the last 9 and a bit years, I’ve only been in remission from my disease for one of those years. I’ve missed out on so many opportunities and general enjoyment because of this disease taking over my life.
Our Journey with Ella and Charlotte
Both of our daughters, Ella (13) and Charlotte (9), have been diagnosed with Crohn’s disease. It’s been a journey of heartbreak, strength, resilience, and learning—for all of us.
“I will never give up trying to make a difference in the world” – Liesel’s story
I am a Crohn’s ileostomate of 27 years, a wife, mother, medical educator, writer, traveller, foodie, advocate and a doctor of 20 years.
“I still live a good life working and doing things I love doing” – Ronald’s story
At 58 years old I still have trouble with restrictions but with determination I still live a good life working and doing things I love doing.
“I’m reminded that my life isn’t completely ‘normal’ – but that’s okay – it’s my normal.” – Christian’s story
Since starting infliximab I’ve also packed up my life and moved to London for six months. I’ve taken part in a placement program in rural India. I’ve travelled to Bali, Singapore, the UK, Hungary, Greece, Belgium, Netherlands, Spain… I’ve attended the AusGP. I’ve graduated from a Bachelor of Pharmacy. I’ve worked full-time. I’ve studied for and sat multiple exams. I’ve learnt how to cook (or at least am trying to). I’ve made new friends and reconnected with old. I’ve been to concerts and festivals and beaches and parties galore.
My journey with UC, ileostomy and a J pouch – Georgia’s story
My name is Georgia. I am 24 years old. I'm in my final year of studying a criminology degree. I am a lover of health, fitness, and Muay Thai, I am a personal trainer, and amongst all this, I am a survivor.
“I’m not the only one with more than one diagnosis” – Allannah’s story
When I ran into people I hadn't seen in a while, they commented on how thin I was. When they asked for an explanation I had nothing to tell them. My GP, who was also impressed with my weight loss, and told me frankly that she had no idea what was wrong. She sent me to a gastroenterologist who was convinced it was Coeliac disease and performed an endoscopy. When it came back negative for Coeliac, he told me there was nothing wrong with me and that I should start drinking alcohol again.
“I have learnt so much about myself” – Bridie’s story
My experience with Ulcerative Colitis (UC) began long before I had a name for it
“Together we can break the silence surrounding IBD” – Natasha’s story.
This is something I feel so truly passionate about, due to the personal impact this disease has had on my life since age 11. I felt I needed to spread awareness in my own way
“Crohn’s might be a part of my life, but it doesn’t get to define it.” – Tahlia’s story
Crohn’s might be a part of my life, but it doesn’t get to define it. I am still me – just a little stronger, a little tougher, and a lot more determined than before.
” You are more resilient than you know” – Amelia’s story
Today, I’m in remission. I still face challenges, but I’ve learned to listen to my body, advocate for myself, and celebrate every small victory.