Surgery
“I will never give up trying to make a difference in the world” – Liesel’s story
I am a Crohn’s ileostomate of 27 years, a wife, mother, medical educator, writer, traveller, foodie, advocate and a doctor of 20 years.
“My friends keep reminding me that I should be proud of myself and lately, I really have been feeling that way.” – Emmie’s story
A few months into traveling, I had another checkup. The results: deep remission. All the hard work, taking multiple daily meds and supplements and working on my diet was all worth it! I cried happy tears in recovery, it had been such a long road back to feeling like myself.
“I still live a good life working and doing things I love doing” – Ronald’s story
At 58 years old I still have trouble with restrictions but with determination I still live a good life working and doing things I love doing.
My journey with UC, ileostomy and a J pouch – Georgia’s story
My name is Georgia. I am 24 years old. I'm in my final year of studying a criminology degree. I am a lover of health, fitness, and Muay Thai, I am a personal trainer, and amongst all this, I am a survivor.
“I’m able to make the most of my life with the people I love” – Jas’ story
Sharing my story is important to me because this disease can be very isolating. Whether you've just been diagnosed or you've had it for years. It's encouraging to hear other people's stories and know that you are not alone on this journey.
Bag, baby and bravery – Kate’s story
Recovery was difficult, especially while navigating new motherhood at the same time. But one year on, I’m healthy, active, and grateful to be here. I used to see stoma surgery as the worst-case scenario—but it truly isn’t. I wish I’d known back then just how much life was still possible after surgery.
“Maybe one day something might come along that works” – Rod’s story
“Maybe one day something might come along that works” – Rod’s story My Crohn’s flare ups have been out of…
“To anyone that knows someone with any disease, please be kind, because everyone you meet is fighting a battle you may know nothing about.” – Libby’s story
The year 2004 changed my life forever. I’ll never forget the day a specialist called and said, “You have Crohn’s…
“Remember, you are not alone, and you are doing amazing” – Julia’s story
If I had been told two years ago that I would end up with an ostomy bag, I probably would have cried and not wanted it and would have worried about being “different”. Today, it’s something I’m incredibly grateful for, and for my surgeons and gastroenterologist who listened. There are plenty of support networks out there for those who are struggling and knowing who they are can be a huge help, not just for your physical health but for your mental wellbeing too. Remember, you are not alone, and you are doing amazing.
“I am not giving up hope”- Kasey’s story
I am not giving up hope and want to share my story with others who may have similar symptoms and feeling completely lost. Please seek specialist help from a gastroenterologist who is specially trained to help people with IBD. Reach out to others in IBD groups because having someone to talk to that can relate to you is invaluable for your mental health. You are not alone, it’s just sad many do not share their story.
“Having to learn to live life in a completely different way takes a heavy mental toll” – Emily’s story
It’s been a long journey to get to where I am today, but I’m proud to say I’m back to feeling strong and fit and pushing myself to do things I never thought possible.
“It’s important to know when you’re not okay, and to seek help during these times.” – Jackie’s story
For me, it’s so important to have people that I can turn to -to know that I’m not alone. I’d advise people to lean on their support network whenever they can. I’d also suggest doing your own research to remain informed, and to advocate for yourself. It’s important to know when you’re not okay, and to seek help during these times.