Youth
“Through all of it we have no choice but to go on with our days” – Svetlana’s story
For the last 9 and a bit years, I’ve only been in remission from my disease for one of those years. I’ve missed out on so many opportunities and general enjoyment because of this disease taking over my life.
Our Journey with Ella and Charlotte
Both of our daughters, Ella (13) and Charlotte (9), have been diagnosed with Crohn’s disease. It’s been a journey of heartbreak, strength, resilience, and learning—for all of us.
“Together we can break the silence surrounding IBD” – Natasha’s story.
This is something I feel so truly passionate about, due to the personal impact this disease has had on my life since age 11. I felt I needed to spread awareness in my own way
“I still face challenges and anxiety around my disease, but I don’t let it take over my life” – Ellah’s story
It was super difficult trying to navigate life being diagnosed at only 17 years old. Even though I had so much support from doctors, my family and my friends, it was mentally and physically exhausting. Shedding light on this terrible disease is so important so people can realise how much of a struggle having IBD really is. At the same time, you can’t let it control your life.
“I’m able to make the most of my life with the people I love” – Jas’ story
Sharing my story is important to me because this disease can be very isolating. Whether you've just been diagnosed or you've had it for years. It's encouraging to hear other people's stories and know that you are not alone on this journey.
“Ulcerative colitis didn’t just change her life it changed all of ours.”
Ulcerative colitis didn’t just change her life it changed all of ours. We became closer. We became more tired, more emotional, more aware of the fragility of everything. There were arguments. Tears. Long nights of silence. But there was also love so much love. We celebrated the little victories: a full week without pain, a good doctor’s report, a laugh in the hospital room. Those moments meant more than any birthday party ever could. We learned how to fight together. How to lean on each other. How to keep hope alive, even when it was flickering.
“The unseen battle” – Jazmin’s poem
A war within, Raging Silently, In the depths of my being, Crohn's, an unwelcome guest, Tearing through my insides
My journey is my strength – Emma’s story
Some days are harder than others. But even on the toughest days, I choose hope.
“So many people will support you through this journey” – Jennifer’s story
Throughout this process I have learnt that people care about you and are there to support you.
“I hope to inspire others to find their own strength in adversity” – Baylee’s story
Through this journey, I’ve come to embrace my illness as part of my story, not the entirety of it. Each challenge has shaped me into a stronger, more compassionate person. I’ve learned that resilience is not just about enduring hardships; it’s about rising above them and using those experiences to inspire others. Today, I look back with gratitude, celebrating not only my achievements but also the strength I've discovered within myself. My journey with ulcerative colitis has taught me that I am capable of overcoming anything life throws my way, and I hope to inspire others to find their own strength in adversity.
“I will always advocate for the safety and protection of us all” – Diya’s story
I know that the surgery may still happen down the road, but for now, I’m enjoying the relief that remission brings and am focused on living life to the fullest.
“It has been a whirlwind but I am hopeful” – Gracie’s story
I have decided to laugh at the hardships of my disease because I think that's the best way to manage! Even though being at work, uni, on film sets or going out with my boyfriend and friends means I always need to know where a toilet is at all times or I may cry. I can only cry so much. I miss broccoli. I miss fibre, spicy foods, salami, I miss it all! And mostly I miss not being in pain. I also miss not pooping my pants.