The purpose of this study is to better understand the monitoring experiences, enablers and barriers, benefits and drawbacks, and preferences in adults with Crohn’s Disease. There is little information about patient perspectives and beliefs regarding disease monitoring and gathering this information can help to guide health care.
We will gather information about your experiences and preferences during Crohn’s disease monitoring using online focus groups. Focus groups allow for 6-8 people to come together to share their knowledge and expertise in a confidential group format. The purpose of the focus groups is to better understand the monitoring experiences, enablers and barriers, benefits and drawbacks, and preferences in individuals with CD. Individuals within the focus groups will also be asked about the strategies they suggest to enhance the monitoring experience for persons living with CD.
Who can participate? You can help us if you:
- Are diagnosed with Crohn’s Disease;
- Are 18 years of age or older;
- Live in Canada, United States, Australia, United Kingdom [England, Scotland, Wales]; speak and understand English fluently;
- Have experienced at least 2 types of disease monitoring [endoscopy (ex. colonoscopy), magnetic resonance enterography (MRE), CT scan, intestinal ultrasound, blood tests, or stool tests].
If you are interested in participating in the focus group, please contact the Research Coordinator Toyin Ogunyannwo at [email protected]