Useful links
Global network of IBD organisations
- Crohn’s & Colitis New Zealand
crohnsandcolitis.org.nz - Crohn’s & Colitis UK
https://crohnsandcolitis.org.uk/ - Crohn’s & Colitis Foundation of America (CCFA)
www.crohnscolitisfoundation.org/ - Crohn’s & Colitis Foundation Of Canada (CCFC)
www.crohnsandcolitis.ca - European Federation Of Crohn’s & Ulcerative Colitis
www.efcca.org - Irish Society For Colitis And Crohn’s Disease
http://www.iscc.ie - South Asian IBD Alliance (SAIA) Home – South Asian IBD Alliance
Non-English websites
- Health Translations https://www.healthtranslations.vic.gov.au (multiple languages)
- Association François Aupetit (AFA)
www.afa.asso.fr (French) - DCCV, Deutsche Crohn Colitis Vereinigung
www.dccv.de (German) - RMT – Riksfoerbundet foer Mag- och Tarmsjuka (RMT)
www.magotarm.se (Swedish) - AMICI Onlus, Association Nazionale per le Malattie Infiammatorie Croniche dell’Intestino
www.amiciitalia.net (Italian) - ACCU España – Confederación de asociaciones de enfermos de Crohn y Colitis Ulcerosa de España – www.accuesp.com (Spanish)
- China Crohn’s & Colitis Foundation CCCF-浙江爱在延长炎症性肠病基金会 (cccf4u.org)
- The Israel Foundation for Crohn’s Disease and Ulcerative Colitis תרומות | העמותה לתמיכה בחולי קרוהן וקוליטיס כיבית בישראל (ccfi.co.il)
- Landsforeningen Mot Fordøyelsessykdommer (Norway) Om Mage-tarmforbundet | LMF | Landsforeningen mot fordøyelsessykdommer (magetarm.no)
- Crohn en Colitis Ulcerosa Vereniging Nederland (CCUVN) Home – Crohn en Colitis NL (crohn-colitis.nl)
- The NPO IBD Network (Japan) NPO法人 IBDネットワーク | 炎症性腸疾患 潰瘍性大腸炎 クローン病 患者会ネットワーク (ibdnetwork.org)
Australian government websites
- Centrelink
www.humanservices.gov.au/customer/dhs/centrelink
Centrelink is part of the federal government Department of Human Services. It delivers payments and services for retirees, the unemployed, families, carers, parents, people with disabilities, Indigenous Australians, and people from culturally and linguistically diverse backgrounds, and provides services at times of major change. - Department of Health
www.health.gov.au
The Australian Government Department of Health website for families, seniors, adults, parents, teenagers, carers etc. Topics covered include education and prevention, conditions and diseases, health products, rural health, services etc. - Food Standards Australia New Zealand
www.foodstandards.gov.au
Food Standards Australia New Zealand has publications and fact sheets for the consumer. Formerly known as ANZFA (Australia New Zealand Food Authority) - National Health and Medical Research Council
www.nhmrc.gov.au
The NHMRC is Australia’s peak body for supporting health and medical research, development of health advice for the community, professionals and government. Also provides advice on ethical behaviour in health care and research. - Therapeutic Goods Association
www.tga.gov.au
The Therapeutic Goods Association carries out a range of assessment and monitoring activities to ensure therapeutic goods available in Australia are of an acceptable standard.
Library and references
- Australian Medicines Handbook
www.amh.net.au
Australian Medicines Handbook provides practical, reliable, comparative medicines information resources for health professionals. - Australian Prescriber
www.australianprescriber.com
The Australian Prescriber is an independent publication providing information about drugs and therapeutics. - MIMS
www.mims.com.au
MIMS is the publication used by GPs, specialists and pharmacists, it provides specific information about medications for a patient’s specific medical condition. - Better Health Channel
www.betterhealth.vic.gov.au
The Better Health Channel is developed by the Victorian Health Department. Excellent source of information and useful links for everybody. - My Doctor
www.mydr.com.au
A website developed & maintained by Doctors, covers medical issues, conditions, healthy eating and fitness. - UK National Institute for Clinical Excellence
www.nice.org.uk
A UK website for the National Institute for Clinical Excellence (NICE), an organisation providing the UK with guidance on promoting good health and preventing and treating ill health. - USA National Library of Medicine
www.nlm.nih.gov
The United States National Library of Medicine is a website for the general public and professionals. - Therapeutic guidelines
www.tg.com.au
The Therapeutic Guidelines is a not-for-profit organisation deriving guidelines for therapy from the worlds literature.
Medical societies
- Gastroenterological Society of Australia
www.gesa.org.au
The GESA website is a great resource for families and professionals, with great graphics and easy to read explanations of the bowel etc. - Gastroenterological Nurses College of Australia Inc
www.genca.org
The GENCA site is useful resource for information relating to specialist gastroenterological nurses. - American Gastroenterology Association
www.gastro.org
The website for the American Gastroenterology Association is a useful site for people living with IBD, families and professionals, with great visuals to help understand the bowel. - British Society of Gastroenterology
www.bsg.org.uk
The website for the British Society of Gastroenterology provides information for treatments, resources and other useful information. - International Organization for the Study Of IBD
www.ioibd.org
The International Organization for the Study of Inflammatory Bowel Diseases (IOIBD) is the only international worldwide organization devoted to these chronic and sometimes disabling diseases involving different parts of the gastrointestinal tract. - Society of International Gastroenterology Nurses and Associates (SGNA)
www.sgna.org
The SIGNEA website is a resource for gastroenterology nurses.
Other forums
- IBD Support Australia
www.ibdsupport.org.au/community-forum
A general information service for people with IBD. - IBD.mindovergut.com
https://IBD.mindovergut.com
An online mental health service offering information, assessment, and online treatment programs (“eTherapy”) for anxiety and/or depression for individuals with diagnosed with Inflammatory Bowel Disease (IBD).
Other health organisations
- Australian Divisions of General Practice
www.gp.org.au
The Australian peak body representing doctors (General Practitioners) throughout Australia. - Australian Hypnotherapists’ Association
www.ahahypnotherapy.org.au
A useful site for those wanting to find an accredited Hypnotherapist. - Arthritis Australia
www.arthritisaustralia.com.au
A useful website for sufferers, families, friends and professionals. - Australian Council of Stoma Associations Inc
www.australianstoma.com.au
The Australian Council of Stoma Association represents the nationwide regional stoma associations. Useful information with links to support groups and other important information. - Australian Psychological Society
www.psychology.org.au
This website provides a service for finding a registered psychologist in Australia. - The Coeliac Society of Australia
www.coeliac.org.au
The Coeliac Society website is a great resource for those sufferers, family members and professionals looking for further information and assistance. - Irritable Bowel Information and Support
www.ibis-australia.org
The IBIS website is a great site for those wanting more information regarding IBS. - IBS.mindovergut.com
Support for those living with Irritable Bowel Syndrome. - Healthy Bones Australia
www.healthybones.org.au
A useful website for those wanting more information relating to osteoporosis. - Leiomyosarcoma
Leiomyosarcoma.org
Leiomyosarcoma (LMS) is a rare form of cancer that most commonly affects the uterus but can also affect other areas such as the bladder or gastrointestinal system. - Rural Doctors Association of Australia
www.rdaa.com.au
A useful website for those wanting more information pertaining to rural doctors. - Dietitians Association of Australia
daa.asn.au/
The website for the Dietitians Association of Australia provides general information on healthy eating and a service to find an accredited dietician with a special interest in IBD. - Continence Foundation of Australia
continence.org.au
Continence Foundation of Australia represents the interests of Australians affected by, or at risk of, bladder and bowel control problems and act as an advocate for their interests. It exists to serve all Australians by promoting bladder and bowel health.
Consumer support
- Consumer’s Health Forum of Australia
www.chf.org.au
The Consumer’s Health Forum is the national voice for consumers, helping shape the health system. - Private Health Insurance Ombudsman
www.phio.org.au
The Private Health Insurance Ombudsman provides an independent service to help consumers with health insurance problems and enquiries. - Psychological Therapy Program
www.tameyourgut.com
Psychological Therapy Program for People Living with Inflammatory Bowel Disease by the IBD Clinic Dept of Gastroenterology & Hepatology.
Clinical trials
- Australian Clinical Trials
www.australianclinicaltrials.gov.au
The website aims to provide reliable and up-to-date information and advice about clinical trials in Australia for the public, researchers and industry. For the public, the website provides easy to understand information about clinical trials in Australia and how to become involved in a clinical trial. For industry, it provides information on the advantages of conducting clinical trials in Australia. For researchers, it provides an overview of the legislative and regulatory environment and useful links. - American Clinical Trials
www.clinicaltrials.gov
The website for American clinical trials.
Find a toilet
- Can’t wait affiliates
www.cantwait.net.au
The Can’t Wait Card is issued to members of CCA who have been formally diagnosed with Crohn’s or colitis (IBD), to help them gain access to a toilet in times of urgency. By recognising the card, retailers, businesses and venue operators allow people IBD access to their toilets when needed. - National public toilet map
toiletmap.gov.au
The Toilet Map provides information on over 16,000 publicly available toilets across Australia, including accessibility, opening hours and facilities, such as showers & baby change.
Other
- Gastro Central
https://www.gastrocentral.com.au/
An online resource providing tips, videos and general information about IBD. - Low FODMAP Diet For Irritable Bowel Syndrome
www.med.monash.edu/cecs/gastro/fodmap
The research team at Monash University have developed a diet to control gastrointestinal symptoms associated with IBS/FGID. - Medicinewise
www.nps.org.au/consumers/
The National Prescribing Service Medicinewise team provides people with advice on how to use medicines safely. - Medic Alert Foundation
www.medicalert.org.au
Medic Alert specialises in personal emergency medical identification.