Crohn's disease
“The unseen battle” – Jazmin’s poem
A war within, Raging Silently, In the depths of my being, Crohn's, an unwelcome guest, Tearing through my insides
“You are NOT a burden – you are a gift.”- Lesa’s story
My name is Lesa, and I was diagnosed with Crohn’s disease in 2015 at the age of 37. To say it was a complete shock is an understatement. I had heard of Crohn’s disease, but I had absolutely no idea about its extremely challenging symptoms and the devastating—and constant—effects it would have on my life.
“It’s such a horrible disease – but for it to have a reason or purpose, I think is great. I think volunteering kind of gives it that purpose. ” – Adam’s story
There’s always going to be good days, there’s always going to be bad days. My personal motto is to roll with the punches. I mean, it’s not always going to be easy, it’s not always going to be one step and you’re better. Sometimes you do just have to kind of sit with that. And it can be horrible, but I think a lot of my stuff is the stuff surrounding Crohn’s — so my Crohn’s has been really bad, but since I’ve been in remission for a couple of years now, which is great, but now it’s just a lot of random stuff. Like, eczema and stuff because of the Crohn’s. And yeah, so it’s always just — you just got to roll with the punches sometimes. And if it’s a bad day, it’s a bad day. And you just go to get through that day, rest, go to bed, and then get up and start the day fresh.
“Maybe one day something might come along that works” – Rod’s story
“Maybe one day something might come along that works” – Rod’s story My Crohn’s flare ups have been out of…
“My three points for living with IBD: Own your health, tell someone, celebrate your wins.” – Daniel’s story
In 2009, I was 20, playing rugby at a high level and at peak fitness, until my body blindsided me.…
“To anyone that knows someone with any disease, please be kind, because everyone you meet is fighting a battle you may know nothing about.” – Libby’s story
The year 2004 changed my life forever. I’ll never forget the day a specialist called and said, “You have Crohn’s…
“If your body is telling you something’s wrong, then it’s probably right.” – Elli’s story
It has now been 6 months; I am slowly starting to feel healthy and be able to enjoy my hobbies. I thought the pain I felt was "normal," but I now know it was not. If your body is telling you something's wrong, then it's probably right. I have decided to share my story to help others who feel alone within their diagnosis.
“Remember, you are not alone, and you are doing amazing” – Julia’s story
If I had been told two years ago that I would end up with an ostomy bag, I probably would have cried and not wanted it and would have worried about being “different”. Today, it’s something I’m incredibly grateful for, and for my surgeons and gastroenterologist who listened. There are plenty of support networks out there for those who are struggling and knowing who they are can be a huge help, not just for your physical health but for your mental wellbeing too. Remember, you are not alone, and you are doing amazing.
“I hope that if this is you, that you hold onto hope that things can get better.” – Amy story
I hope they discover why young people like me are increasingly being afflicted with this humiliating illness. And I hope that if this is you that you hold onto hope that things can get better. They have for me.
“Keep pushing until someone listens.” – Amelie’s story
Crohn’s is part of my life now. It’s not who I am, but it’s shaped me. It’s made me stronger, more aware, and way more vocal about what I deserve especially in a doctor’s office. If you’re struggling and being dismissed, don’t stop speaking up. You know your body. Keep pushing until someone listens. Because your pain is real. And you deserve to be heard.
“Be proud of who you are and celebrate your achievements when you’ve faced so many odds.”- Clare’s story
I think this is the most amazing and beautiful thing about living with Crohn’s and other chronic diseases that we get to have an amazing and different perspective than others. Also, having Crohn’s has made me an incredibly hard worker in anything that I do, and has allowed me to understand that any challenges in my life that come my way I will be able to handle.
“I never could have imagined this would be my life again — taking risks, laughing loudly, living fully” – Jeremy’s story
When I was sick, struggling just to get out of bed, I never could have imagined this would be my life again — taking risks, laughing loudly, living fully.