This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.
Crohn's disease
“Living your life and chasing your dreams” – Ironman Sam’s story
I want to spread the word that Crohn’s is horrible. It is life changing. But it doesn’t have to prevent you from living your life and chasing your dreams.
“I know now that I am stronger” – Trish’s story
Sometimes you can let it take over your life and at times life can feel quite dark. I've spent time hooked up to a drip to take Infliximab and feeling sorry for myself. I've also been airlifted to hospital because I've suspected a bowel perforation. I know now that I am stronger. I will have bad days as well as great days -- and the good days generally outweigh the bad. Keeping myself healthy for myself and my family is number one. I have also learned that letting others help me and support me is not a sign weakness.
“I’ve managed to do so many things I wanted to do” – Tom’s story
At one point I was super low, and I got out of it. I thought I'd never be able to perform again. I'd never be able to travel, and I wouldn't be able to leave the house. I've been able to do all of that. I've managed to do so many things I wanted to do – that I never thought I could do. By sharing how I feel, I hope that people will draw some hope from that.
“Their stories have filled me with confidence that this was the right decision for me” – Beatrice’s story
I have met some amazing people throughout this journey, both patients and professionals alike, and their stories have filled me with confidence that this was the right decision for me. Life with a stoma is certainly not an easy one, and also not an easy decision to make. In my case I can't imagine life without it, and I look forward to see where life takes us.
“A different perspective on life and what I value most” – Maddy’s story
"Despite how overwhelming this has been, and at times exceptionally isolating, I’ve learnt to adapt my lifestyle and thrive while living with Crohn’s disease. Having an amazing support network has helped, and exercise has been a lifesaver."
“I’ve almost lost my life a few times, so I’m determined to tick off my goals” – Bree’s story
"I think it has made me a more resilient person. I’ve almost lost my life a few times, so I’m determined to tick off my goals. You never know what the next day will bring, and there’s extra motivation to live every day to its fullest."
“For now, I can live my life in a way that I could have never imagined” – Tayla’s story
Since my surgery in 2020, after a few switches in biologicals due to allergic reactions, I have finally achieved a state of clinical remission with the help of a new gastroenterologist who believes every symptom and works tirelessly to ensure I’m living life the best I can.
“Even in the depths of despair, there is always hope” – Ebony’s story
My story is not just about surviving Crohn’s; it’s about thriving despite it. It’s about finding light in the darkest of times and believing in a future beyond the pain. I hope my journey inspires others facing similar battles to keep pushing forward, to find strength in their struggle, and to know that even in the depths of despair, there is always hope.
“I have a much better perspective of life and its hurdles” – Champion rally co-driver Matt Dillon’s story
I remember taking my gold medal to my GP and gastroenterologist, as a way of saying thank you. It’s been a long journey to get to this level of competing, and they were a significant part of my journey. I wanted to acknowledge their work, and the impact that they’ve had on me.
Meet Alexandra: Fearless fundraiser
Alexandra Nash tells her story of completing the 2023 Live Fearless Challenge and what obstacles she had to overcome to get there
Marion’s way
Marion Pilowsky battled through Crohn's to film her documentary to educate about Crohn's and be inspired to achieve the unachievable