Education
Living with Crohn’s for 58 Years – Elina’s Story
When I look back and see me now, it's breathtaking. I am very grateful every day. I am 70, going on 71 next month! I have traveled, and Crohn's did not stop me from work travels or scholarships abroad.
Navigating My Life with Crohn’s Disease – Devin’s Story
To anyone living with IBD, remember you’re not alone. With support, self-care, and hope, anything is possible!
How a Young Girl with Crohn’s Became a Nurse – Dana’s Story
Helping others with similar stories and health conditions makes me feel like I can make a difference in this world even if it’s just one person.
“To anyone out there struggling: don’t give up.” – Nathan’s story
Getting on top of UC didn’t just change my health; it reshaped my life. Years ago, I was told that firefighting wasn’t a realistic path for someone with my condition. Today, I work as an Aviation Rescue Fire Fighter. Beginning a career like this is a big feat for anyone, but for me, it represents something more. Now that I’ve built the foundation to manage my condition, I see this as a platform—to move into my next challenge, to grow, and to keep proving what’s possible when you take ownership of your health.
“Keep your face toward the sun, and the shadows will fall behind you!” Tyler’s story
If I could go back and talk to 18-year-old me — or anyone facing their first diagnosis — I’d say that this isn’t the end, and it doesn’t mean your life is ruined. You’re still the same person you were yesterday, and you’ll be the same person tomorrow. Keep your face toward the sun, and the shadows will fall behind you!
“I know I’m in very good hands with my amazing specialist and nursing team and I would like to thank them all so much” – Rachael’s story
I have colonoscopy's every 3 years now as, in my last few, I have been in deep remission. I know I'm in very good hands with my amazing specialist and nursing team and I would like to thank them all so much.
“I feel like I am one of the lucky ones being diagnosed so quickly when some people wait years for answers.” – Amanda’s story
I had never known such high anxiety until this trip, walking around an exhibition at the Australian Museum not knowing if my body will be good or I would have to run and find a toilet.
“Through all of it we have no choice but to go on with our days” – Svetlana’s story
For the last 9 and a bit years, I’ve only been in remission from my disease for one of those years. I’ve missed out on so many opportunities and general enjoyment because of this disease taking over my life.
Our Journey with Ella and Charlotte
Both of our daughters, Ella (13) and Charlotte (9), have been diagnosed with Crohn’s disease. It’s been a journey of heartbreak, strength, resilience, and learning—for all of us.
“I will never give up trying to make a difference in the world” – Liesel’s story
I am a Crohn’s ileostomate of 27 years, a wife, mother, medical educator, writer, traveller, foodie, advocate and a doctor of 20 years.
“My friends keep reminding me that I should be proud of myself and lately, I really have been feeling that way.” – Emmie’s story
A few months into traveling, I had another checkup. The results: deep remission. All the hard work, taking multiple daily meds and supplements and working on my diet was all worth it! I cried happy tears in recovery, it had been such a long road back to feeling like myself.
“I still live a good life working and doing things I love doing” – Ronald’s story
At 58 years old I still have trouble with restrictions but with determination I still live a good life working and doing things I love doing.