IBD Awareness,
“It took a long, long time for me to learn to only take on one task at a time and start living in the slower lane” – Sue-Ellen’s story
I’m still working 2 part time jobs (hope to stop soon), have a reasonably healthy diet and regularly exercise (swim 1-2km most days, gym twice a week, walk, and go on the occasional bike ride). My health is pretty good and manageable. We are now empty-nesters and enjoy going on regular camping trips with our camper. We also enjoy bushwalks and ocean swims.
“If I can channel that frustration into something positive, that would be great” – Henry’s story
“If I can channel that frustration into something positive, that would be great” – Henry’s story My journey with Crohn’s…
“There will always be a way to achieve your dreams” – Jameson’s story
No matter what goals in life you may have, what hobbies and interests you are passionate about or what side of the globe you are on, there will always be away to achieve your dreams
“The people who love and support you will listen” – Hamish’s story
At first, I tried to ignore my symptoms, desperate to feel “normal” like everyone else. But deep down, I felt weak and powerless. I turned to alcohol and self-destructive habits, using them as an escape, a way to momentarily forget the reality of my condition. But after years of battling stress, frustration, and anger, I finally accepted the truth. This disease wasn’t going anywhere—but how I chose to live with it was up to me.
“I will always advocate for the safety and protection of us all” – Diya’s story
I know that the surgery may still happen down the road, but for now, I’m enjoying the relief that remission brings and am focused on living life to the fullest.
“It has been a whirlwind but I am hopeful” – Gracie’s story
I have decided to laugh at the hardships of my disease because I think that's the best way to manage! Even though being at work, uni, on film sets or going out with my boyfriend and friends means I always need to know where a toilet is at all times or I may cry. I can only cry so much. I miss broccoli. I miss fibre, spicy foods, salami, I miss it all! And mostly I miss not being in pain. I also miss not pooping my pants.
“Some would say I’m unlucky to have gotten sick; I say I’m lucky I lived.” – Trent’s story
It’s hard to fathom how much you take living a “normal life” for granted. Being able to sit down and enjoy a meal, go to the footy on a Saturday, enjoy a beer without worrying about what’s to come, or just sit on the couch with your wife after dinner watching TV. It’s little things like this you don’t realise how good they are until you can’t do them.
“I want to be someone who talks about it” – Cody Ramsey’s story
"Losing 29 kilograms in a matter of weeks, surviving multiple surgeries and an eight month stint in hospital, he is set to make what may be the greatest comeback in rugby league history."
“Looking at the bigger picture is vital” – Katie’s story
When I was a teenager, I didn’t have these kinds of conversations, and I think that’s part of why my diagnosis took longer than it should have. A lot of people with Crohn’s disease keep their symptoms to themselves out of fear or shame, and I hope that by sharing my story, I can encourage others to be more open about their struggles.
“Living your life and chasing your dreams” – Ironman Sam’s story
I want to spread the word that Crohn’s is horrible. It is life changing. But it doesn’t have to prevent you from living your life and chasing your dreams.
“I know now that I am stronger” – Trish’s story
Sometimes you can let it take over your life and at times life can feel quite dark. I've spent time hooked up to a drip to take Infliximab and feeling sorry for myself. I've also been airlifted to hospital because I've suspected a bowel perforation. I know now that I am stronger. I will have bad days as well as great days -- and the good days generally outweigh the bad. Keeping myself healthy for myself and my family is number one. I have also learned that letting others help me and support me is not a sign weakness.
“If you feel something isn’t right with your body or your child’s, stick to your guns and don’t back down” – Kelly and Xavier’s story
Our family has always been there to support us. During our hospital admissions, they’d be there in a heartbeat and would do everything they could to keep us, and Xavier entertained. In saying that, no one in the family has had IBD, so we’re working out what we can do together.