Medication
My journey is my strength – Emma’s story
Some days are harder than others. But even on the toughest days, I choose hope.
“Maybe one day something might come along that works” – Rod’s story
“Maybe one day something might come along that works” – Rod’s story My Crohn’s flare ups have been out of…
“To anyone that knows someone with any disease, please be kind, because everyone you meet is fighting a battle you may know nothing about.” – Libby’s story
The year 2004 changed my life forever. I’ll never forget the day a specialist called and said, “You have Crohn’s…
“I hope to help inspire other teens with IBD and encourage them to share their own”- Maythem’s story
Even though the people around me kept telling me I was faking, I knew something deep inside was wrong. I…
“Keeping your emotions and thoughts bottled up can hurt more than the disease itself” – Josh’s story
To anyone battling UC, or any invisible illness, I want you to know: You are not alone.
“So many people will support you through this journey” – Jennifer’s story
Throughout this process I have learnt that people care about you and are there to support you.
“It’s important to know when you’re not okay, and to seek help during these times.” – Jackie’s story
For me, it’s so important to have people that I can turn to -to know that I’m not alone. I’d advise people to lean on their support network whenever they can. I’d also suggest doing your own research to remain informed, and to advocate for yourself. It’s important to know when you’re not okay, and to seek help during these times.
“It took a long, long time for me to learn to only take on one task at a time and start living in the slower lane” – Sue-Ellen’s story
I’m still working 2 part time jobs (hope to stop soon), have a reasonably healthy diet and regularly exercise (swim 1-2km most days, gym twice a week, walk, and go on the occasional bike ride). My health is pretty good and manageable. We are now empty-nesters and enjoy going on regular camping trips with our camper. We also enjoy bushwalks and ocean swims.
“Not letting it define me was massive” – Chloe’s story
I think I got very deep into Crohn's disease being part of my identity for a long time. Now it's more of an unwanted friend that I live with every day. You don't have to become your diagnosis. There's so much more to life outside of that. You might have to adjust, but you don't have to miss out on everything.
“The people who love and support you will listen” – Hamish’s story
At first, I tried to ignore my symptoms, desperate to feel “normal” like everyone else. But deep down, I felt weak and powerless. I turned to alcohol and self-destructive habits, using them as an escape, a way to momentarily forget the reality of my condition. But after years of battling stress, frustration, and anger, I finally accepted the truth. This disease wasn’t going anywhere—but how I chose to live with it was up to me.
“It has been a whirlwind but I am hopeful” – Gracie’s story
I have decided to laugh at the hardships of my disease because I think that's the best way to manage! Even though being at work, uni, on film sets or going out with my boyfriend and friends means I always need to know where a toilet is at all times or I may cry. I can only cry so much. I miss broccoli. I miss fibre, spicy foods, salami, I miss it all! And mostly I miss not being in pain. I also miss not pooping my pants.
“Some would say I’m unlucky to have gotten sick; I say I’m lucky I lived.” – Trent’s story
It’s hard to fathom how much you take living a “normal life” for granted. Being able to sit down and enjoy a meal, go to the footy on a Saturday, enjoy a beer without worrying about what’s to come, or just sit on the couch with your wife after dinner watching TV. It’s little things like this you don’t realise how good they are until you can’t do them.