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“Some would say I’m unlucky to have gotten sick; I say I’m lucky I lived.” – Trent’s story
It’s hard to fathom how much you take living a “normal life” for granted. Being able to sit down and enjoy a meal, go to the footy on a Saturday, enjoy a beer without worrying about what’s to come, or just sit on the couch with your wife after dinner watching TV. It’s little things like this you don’t realise how good they are until you can’t do them.
“I want to be someone who talks about it” – Cody Ramsey’s story
"Losing 29 kilograms in a matter of weeks, surviving multiple surgeries and an eight month stint in hospital, he is set to make what may be the greatest comeback in rugby league history."
“You deserve to be heard” – Erin’s story
I thought I was honestly a goner. I want to show everyone that there is hope even when you feel like there’s no way out.
Testing my limits and inspiring others” Owen’s story
Yet, through this turbulent period, something changed within me. As my body slowly regained strength, so did my resolve. I knew I had been given a second chance, and I was determined to make the most of it. Less than two months after my total colectomy, I completed a sprint triathlon with my new ileostomy bag, finishing 8th in my age group. The victory was more than just a physical achievement; it was a testament to my willpower and a signal to myself that my journey was far from over.
“Looking at the bigger picture is vital” – Katie’s story
When I was a teenager, I didn’t have these kinds of conversations, and I think that’s part of why my diagnosis took longer than it should have. A lot of people with Crohn’s disease keep their symptoms to themselves out of fear or shame, and I hope that by sharing my story, I can encourage others to be more open about their struggles.
“Thankfully I received that amazing gift”: Transplant Australia Football Club player and Chairman Ante Kelic
"It can be powerful for people to see recipients with similar interests and passions, who have come out the other side."
“Treat everyone as a human being, not a textbook case.” – Sara’s story
She provided me with great advice – the basis of which was my focus and energy should be on getting through the day. I try not to worry about what this disease could do to me. I just worry about what it’s doing right now, and how I’m going to better it today.
“I know now that I am stronger” – Trish’s story
Sometimes you can let it take over your life and at times life can feel quite dark. I've spent time hooked up to a drip to take Infliximab and feeling sorry for myself. I've also been airlifted to hospital because I've suspected a bowel perforation. I know now that I am stronger. I will have bad days as well as great days -- and the good days generally outweigh the bad. Keeping myself healthy for myself and my family is number one. I have also learned that letting others help me and support me is not a sign weakness.
“If you feel something isn’t right with your body or your child’s, stick to your guns and don’t back down” – Kelly and Xavier’s story
Our family has always been there to support us. During our hospital admissions, they’d be there in a heartbeat and would do everything they could to keep us, and Xavier entertained. In saying that, no one in the family has had IBD, so we’re working out what we can do together.
“Do not suffer in silence” – Adam’s story
The start of my IBD journey has been highly traumatic and has been filled with anxiety and stress. Just getting the diagnosis was all that I needed to settle me. I urge anyone who is symptomatic and who does not have a diagnosis to push your GP or go to emergency to get the answers you need. No-one should have to live in fear about not knowing what is happening in their body.
“Their stories have filled me with confidence that this was the right decision for me” – Beatrice’s story
I have met some amazing people throughout this journey, both patients and professionals alike, and their stories have filled me with confidence that this was the right decision for me. Life with a stoma is certainly not an easy one, and also not an easy decision to make. In my case I can't imagine life without it, and I look forward to see where life takes us.
“A different perspective on life and what I value most” – Maddy’s story
"Despite how overwhelming this has been, and at times exceptionally isolating, I’ve learnt to adapt my lifestyle and thrive while living with Crohn’s disease. Having an amazing support network has helped, and exercise has been a lifesaver."