How a Young Girl with Crohn’s Became a Nurse – Dana’s Story
Back in 2015, at just the age of 14, I was diagnosed with Crohn’s disease. Getting diagnosed was not an easy journey: I had constant battles with doctors who misdiagnosed me, said it was all in my head, or said I just “did not want to go to school”. It was thanks to my family being so patient and persistent that I was able to get my diagnosis, and now at 25, I have a great support system.
Learning: At School and About Myself
When I was diagnosed, I felt very alone: Kids at school, or around me, didn’t know what Crohn’s Disease was. I remember thinking that I wished it was easier to explain my condition, or wishing I had access to any kind of simple resource for my age that I could share with friends.
High school was a struggle – the hardest part was the stress, which took a toll on both my physical and mental health. Even though I was in and out of the hospital continuously, I was able to push through, and I’m so grateful for both my parents and my high school being supportive of my condition. It was challenging, but when I wasn’t able to attend in-class, I did my schoolwork from my hospital bed and I’m proud of myself for being resilient.
I persevered and through my experience, I found my career as a nurse. Helping others with similar stories and health conditions makes me feel like I can make a difference in this world even if it’s just one person. I’m a big advocate for online resources and support groups for people of all ages. Know that you’re not alone in this, there are others out there that share similar experiences like mine or yours, so you don’t need to face it alone.
One of my proudest feelings through it all is realising I could use my experience as an educational advantage. I have become the go-to person in my office for others that live with Crohn’s disease or IBD. Many patients live with the condition, so knowing I’m able to understand their struggles and give them the support they need and deserve, brings me so much joy.
Living: Toward a Fearless Future
On my journey, I’ve realised to take things day by day and to be kind to yourself. Yes, there will be days when you wake up, and you can tell it will be a bad day. However, I also don’t let my Crohn’s disease define me: I go to the gym every day and enjoy playing netball. Staying active is very important when you have IBD, and even gentle exercise and movement makes a big difference.
I’ve also learned to not limit myself (and you shouldn’t either!). Next year, I’ll be going to Europe for six months. Though travel and IBD can be tricky, I won’t let it stop me from going. I’m so excited for what I know will be an unforgettable trip and continue to be hopeful for the future.
Although it is still a struggle from time to time, I know I can rely on my family, friends and now my specialist to help me cope and live the life I have wanted.
Having people in your life that you can rely on can make all the difference through your journey with IBD. You can find a Support Group here to meet with others living with or impacted by IBD in a safe, considerate environment.
If you or someone you know would like to share their own story, click here.