Help define the IBD related burden from a global patient perspective

The IBD Disk 2.0 core group, (principal investigators Prof. Dr. Marc Ferrante – KU Leuven Belgium, Prof. Dr. Ailsa Hart – St Mark’s Hospital London United Kingdom, and Prof. Dr. Corey Siegel – Dartmouth Health Centre New Hampshire United States), kindly invites you to participate in their Delphi study.

The goal of the IOIBD-supported IBD Disk 2.0 project is to identify the most important impacts contributing to the burden of inflammatory bowel diseases (IBD), from the perspective of a broad and representative group of stakeholders (including people living with IBD, IBD nurses, gastroenterologists specialised in IBD, academic IBD researchers and mental health workers / psychologists in the field of IBD). This is a global initiative aiming to gather the perspective of stakeholders across Europe, America and Australia.

To obtain an accurate and comprehensive view of the burden on people living with IBD, your input is crucial. Attached you will find an invitation with detailed information about the project, including the link to a survey. For your convenience, you can also find the survey link here: https://www.surveymonkey.com/r/IBD_Disk_2_Round_1

Completing this survey will take approximately 40 minutes and should be done in one sitting. This survey closes September 12th, so please complete the survey timely. A second survey will be sent out September 29th and close 4 weeks later.

Participation in this study is anonymous. If you have any questions or experience any problems completing the survey, please contact [email protected].

Thank you in advance for your participation.
Kind regards,
The core team of the IBD Disk 2.0:

Patient advisory board comprising of x patients
IBD expert physicians: Corey Siegel, Marc Ferrante, and Ailsa Hart
Psychologists: Jessica Salwen-Deremer and Bep Keersmaekers
Researchers: Liselotte Fierens, Manon Vanhaverbeke, and Marta Walentynowic