Crohn's disease
“I was made to think it was all in my head for so long” – Simone’s story
My mental health and physical health have suffered for years now. I will soon start my journey with biologics. I have a giant fear of needles but I’ve never been so excited to hopefully experience remission.
Living Fearless with Tim
I do it for anyone else out there that is battling Crohn's and colitis. I know how hard it is, and also how hard it can be to talk about it and to feel understood
“Ulcerative colitis didn’t just change her life it changed all of ours.”
Ulcerative colitis didn’t just change her life it changed all of ours. We became closer. We became more tired, more emotional, more aware of the fragility of everything. There were arguments. Tears. Long nights of silence. But there was also love so much love. We celebrated the little victories: a full week without pain, a good doctor’s report, a laugh in the hospital room. Those moments meant more than any birthday party ever could. We learned how to fight together. How to lean on each other. How to keep hope alive, even when it was flickering.
Bag, baby and bravery – Kate’s story
Recovery was difficult, especially while navigating new motherhood at the same time. But one year on, I’m healthy, active, and grateful to be here. I used to see stoma surgery as the worst-case scenario—but it truly isn’t. I wish I’d known back then just how much life was still possible after surgery.
“Hold on to hope if you can” – Chloe’s story
While my Crohn's is not fully settled, I am happier than ever. I have almost finished my degree in Journalism, I am working in a job that I love and am surrounded by amazing friends and support. I have been able to travel overseas with complications and plan to go on three more trips this year!
“The unseen battle” – Jazmin’s poem
A war within, Raging Silently, In the depths of my being, Crohn's, an unwelcome guest, Tearing through my insides
“You are NOT a burden – you are a gift.”- Lesa’s story
My name is Lesa, and I was diagnosed with Crohn’s disease in 2015 at the age of 37. To say it was a complete shock is an understatement. I had heard of Crohn’s disease, but I had absolutely no idea about its extremely challenging symptoms and the devastating—and constant—effects it would have on my life.
“It’s such a horrible disease – but for it to have a reason or purpose, I think is great. I think volunteering kind of gives it that purpose. ” – Adam’s story
There’s always going to be good days, there’s always going to be bad days. My personal motto is to roll with the punches. I mean, it’s not always going to be easy, it’s not always going to be one step and you’re better. Sometimes you do just have to kind of sit with that. And it can be horrible, but I think a lot of my stuff is the stuff surrounding Crohn’s — so my Crohn’s has been really bad, but since I’ve been in remission for a couple of years now, which is great, but now it’s just a lot of random stuff. Like, eczema and stuff because of the Crohn’s. And yeah, so it’s always just — you just got to roll with the punches sometimes. And if it’s a bad day, it’s a bad day. And you just go to get through that day, rest, go to bed, and then get up and start the day fresh.
“Maybe one day something might come along that works” – Rod’s story
“Maybe one day something might come along that works” – Rod’s story My Crohn’s flare ups have been out of…
“My three points for living with IBD: Own your health, tell someone, celebrate your wins.” – Daniel’s story
In 2009, I was 20, playing rugby at a high level and at peak fitness, until my body blindsided me.…
“To anyone that knows someone with any disease, please be kind, because everyone you meet is fighting a battle you may know nothing about.” – Libby’s story
The year 2004 changed my life forever. I’ll never forget the day a specialist called and said, “You have Crohn’s…
“If your body is telling you something’s wrong, then it’s probably right.” – Elli’s story
It has now been 6 months; I am slowly starting to feel healthy and be able to enjoy my hobbies. I thought the pain I felt was "normal," but I now know it was not. If your body is telling you something's wrong, then it's probably right. I have decided to share my story to help others who feel alone within their diagnosis.